Fitting In At A Deaf Convention

I was so excited! Someone I had met out in the Deaf community mentioned a convention coming up for people who'd lost their hearing (or what was left of it) after age 18. I was thrilled! Deaf people I could sign with who remembered what things sounded like more than two decades ago. I could mingle with soon-to-be-friends and learn about how others similar to me crossed over to the Deaf culture to a degree. Yea!

Kenny (my hubby) was excited, too. We were sure some of the Deaf would bring hearing family and Kenny would be able to discuss his feelings, thoughts, and experiences with people who knew how he felt. I mean I've always been deaf to a degree, but total silence kind of snuck up on us and it was a way of life that took some major getting used to. So, it was an adventure for both of us.

However, what we envisioned was not quite what happened.

When we walked into the main room from the registration table (where Kenny had to interpret because the people there used only voice), the room was filled to the rim with people wearing CIs, all talking without signs, and lots of booths set up--all about technology that could "make you hear again."

The lectures, which waved a flag stating they were fully accessible, were only captioned (poorly) on a screen at the side of the room. And interpreter for us American Sign Language users? Nope. Apparently most late-deafened adults (as they called themselves) don't use sign language. But I was still thrilled to meet fellow signers and people from such places as Gallaudet University.

To top it all off, the last night of the convention, they had a huge karaoke party where music blasted and all were given a balloon to enjoy the beat. But see I'm totally stone deaf and didn't feel comfortable at that party. Still, I tried to enjoy what aspects of the convention I could be a part of. I even went to more than one thinking maybe the next one would relate more to me. Unfortunately, no. However, I did make a handful of new friends for which I am grateful.

Now, I don't want to seem hateful or judgmental. There were things here and there I enjoyed that didn't so much require ASL or Cultural norms and there were lots of hugs and lots of accepting each other -- no matter how you communicated. But I just don't think I'll go again unless they come to Grand Rapids, MI.

After a while, it all caused me think about my way of going about being the stone deaf person I am. For one thing, I do consider myself bi-bi (bilingual -- ASL and English, and bicultural). Most LDAs do not. I admit I did try a CI a long time ago and it was a total flop. They had to take it out later for a medical reason, so that's done. I'm happy being Deaf, too, but sometimes when I miss my show tunes, it does get me down.

I use sign to communicate. I have the world's worst lipreading skills I've ever known about and I do not like the sound of my voice -- though admittedly I do use it at appointments to make it easier on my interpreter. I like to use big words and so it's easier to make sure exactly what I want to say gets said.

The only big problem I have is I have some mental disorders that prevent me from socializing for the most part. So I haven't made it to many Deaf events and that makes me sad. I do try though. I WANT to go, so I'm working on it.

Long story short, the deaf community is truly diverse. You have to find where you fit in and go from there. You should be comfortable the way you are -- no matter how different that makes you. I'm working towards that myself.

AH! TECHNOLOGY!

Forever gone are the days of phone booths and having to actually go and see the person you want to contact, because there’s no way for you to reach them. Here instead are such things as cell phones, video relay centers, and vibrating alarms. And, to make things even more bewildering. As fast as you can learn how to use these things, there will be updates and even newer technology to deal with.

Don’t get me wrong—I love technology. I mean, having a way to contact people while I’m out and about is an unbelievable relief. As with most deaf people, there was a time when flat tires and car accidents left us stranded with no where to turn.

Although there’s tons of things to help the deaf and hard of hearing get through life now (doorbell signalers, door knock flashers, baby cry alerts, vibrating alarm clocks, flashing fire alarms and more), one thing seems to have changed the most for us: using the phone.

Years ago, TTYs and TDDs were the way to contact people directly. If the other person didn’t have a TTY or TDD, for example, if they were hearing, the deaf and hard of hearing would call the relay center to help with the contact. We’d type. Then the center would read what we typed to the other person. They’d respond and the center would then type to us what was being said. It was great for what it was, and some people and companies do still use them, but at times it could be terribly slow and quite impersonal.

Now, text cell phones do the trick, but there’s been one improvement many people rate as top notch—the ability to use Sign Language to communicate over the phone. I’m serious! How? Video Phones (VP), computers, and even some cell phones now offer that capability.

If two people have VPs, they can simply dial directly and have a nice “face to face” conversation with each other. This can also be done through computer instant messaging programs, other computer programs such as Skype, and even your cell phone.

But now, thanks to Video Relay Services (VRS), if only the deaf or hard of hearing have VPs and they need to reach someone who doesn’t, they can still use Sign Language and call on a home-based phone line.

It works in much the same way as TTY Relay Centers work. The deaf person dials the phone number for whomever he or she is calling and is immediately connected with some an interpreter at the VRS. The interpreter there then signs with the deaf person “face to face.” VRS connects the deaf to the target person, the deaf person signs or uses his voice (whichever he’s more comfortable with), the ‘terp tells the other person what was signed (if the deaf person isn’t using Voice Carry Over—VCO), the other person responds in their regular phone and the ‘terp signs to the deaf what was said. Confusing” Maybe at first, but once you’ve done it a few times it’s pretty much a godsend.

So, technology really has come a long way for deaf and hard of hearing people. I, for one, am excited to see what comes next!

I'M FREE -- AND IT'S TERRIFYING!

This weekend, my family is going away to Illinois. Actually, they left last night and won't be home till Sunday afternoon. At first, this seemed like a wonderful treat! Oh, don't get me wrong, I adore my husband and kids, but I've had the kids 27/7 since school got out and I'm downright exhausted! I need a break!

Like I said, they left last night. When I signed good-bye and waved to the van as they rode away, I admit I did feel a little empty. But I was still pretty excited about being alone to do ...nothing... for two-and-a-half days. I waved good-bye, clapped for the dog to come in, and shut the door behind me. And that's when it hit me....FEAR.

I hadn't been alone in that house overnight for years. In fact, I can't remember the last time I was alone in the house for the night. So when it started getting late, I started getting more and more anxious.

I don't think many people realize that it can be pretty darn scary when you can't hear a thing. Turning off all the lights (well, most, anyway), locking the doors, going to bed alone...with no way of knowing if someone was breaking in, knocking on my door to warn me of something, calling me (I only have a small light attached directly to my VP, which is downstairs in the dining room, and I can't afford more), or if there was a storm and a tornado hit.

I am poor and cannot afford signals and such. I have to work with what I have...a text pager and email. I do have a landline phone downstairs for the other members of my family or for emergency calls to 911. I can also call 911 through my VP, but that, too, is downstairs, and I hardly ever use it. I'm talking an inch of dust!

So, if someone were to break into my home, there's no way I would even know...until they killed me. Then I could look down from heaven and smite them. But I have no way of contacting 911 from where I sleep. Also, as amazing at it sounds, the last time a HUGE storm hit (I'm talking HUGE), I didn't even know it had rained till I woke up the next morning, looked outside, and saw trees laying in the street. So, if a tornado warning blares, I wouldn't know it.

So, suffice it to say, it's scary for me to be alone in my home. The only relieving fact is that I do get downtime and things might not go wrong. But is it enough to get me through the weekend? Heck, yeah! I'm alone! I'm alone! I'm alone! No kids! No kids! No kids!

Yea!!!!